Tag Archives: Lyme Disease

Powerful Speech

Powerful Speech-Words are articulated so well and many lyme patients can relate to this.

We are here! Tell your story! ❤

Love,

R

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Over the moon

September 21, 2012 will always be a memorable night in my life forever.

Let me explain the reason why. 

Thalia is a latin pop singer/actress, who in 2008 was also stricken with lyme disease. When I fell ill last year, she was one of my biggest motivators that I will also get better. Her story of being diagnosed with lyme disease and doctors telling her it was depression or anxiety after the birth of her baby..sounded alot like all the other lyme misdiagnosis we always hear.   You can read about her story here: http://lymedisease.org/news/touchedbylyme/thalia.html. In her book “growing stronger”, she also talks a little bit more in detail of her struggles as well as seeing the end of the finish line  to battling her disease.

I listened to her music in the most difficult part of my lyme disease process, even when I didn’t have the strength to dance, I did..to her music even though the next day I would ache and hurt.  Her songs inspired me, pushed me and soothed my heart and soul with love. I remember listening to her music and crying. Crying with a combination of sadness and inspiration from her music and lyrics. It inspired me, that I too will get over this hurdle. 

I entered a contest to win tickets to see her perform live in NYC and won! 

 

I always say things happen for a reason. Who knew that a year later of my lyme diagnosis and feeling better, I would have the chance to see her in concert. She was dancing, jumping, singing, and doing everything a “normal” person would.  She even had a second baby after battling with lyme (which is another inspiration for me, since we would love to have children soon). She triumphed over her lyme disease and she is one of my biggest inspiration of triumphing over this disease.  The biggest accomplishment of the night for me, was that I stood in line with high heels to get in the concert for about 2 hours(standing this long and still feeling well). 

 The concert was wonderful and I am thankful that my struggles brought me to her music. Her music is filled with so much love and joy that it always leaves me feeling really good afterwards.  I enjoyed a night of music, love with my mom and sister in law and over all a sense that I too will win this battle shortly. Thank you Thalia for touching my life in a positive way and  for touching so many people’s lives.

Life has surprising twists and turns…a memorable night that I will always remember.

I leave you with this wonderful picture of the Empire State Building that I took while standing in line..such a beautiful building (I couldn’t stop staring at it).

-R

Train Ride Home

Invisible Illness

Today on the train ride home I saw a disabled man in a wheelchair must have been in his early 30’s with no legs and no arms.

I started thinking how some illnesses or diseases are visible while others like lyme disease are not.

Here I am a 29 year year old woman, I look in great shape from the outside but  people don’t see or feel what I feel.

At times I feel trapped in my own body.

A body that was once so agile to run, walk fast and jump..not anymore for now..atleast not for now.

My illness is invisible and all seems well.

With a visible illness or impairment people notice and sometimes judge.

What is better, to have a visible or invisible illness, there are pros and cons to both sides of the coin no matter how you look at it.

Running Lights

I used to be one of those people who would run and  cross the street before the traffic light turned green to get to the other side.
Now I patiently wait until the light is red for me to cross the street.
I no longer run in a fast pace just to cross the street.
I can’t no longer do that.
What is the rush? Lyme has taught me to take things easy.
My body won’t allow me to rush anymore.
Light is red, stop running, just walk and cross the street, you will get to your destination no matter what…

Lyme Awareness Month

May…Lyme Awareness Month

If you asked me what Lyme Disease was a year ago, I would have said “What is that?, Lyme disease…?”.  Now, unfortunately, Lyme Disease is all I have in my mind these days.

This disease has brought me closer to my body…hearing it every single day. I have to ask myself what is it feeling, what symptom is here today, what symptom isn’t, how am I feeling.  A sense of desperation, of waiting, of wanting to know,when will this stop.  I was thinking today, where would I be a year from today, it got me excited knowing that I will be healed, and looking back at this journey as a growing experience.

I think I am one of the lucky ones, I got diagnosed with lyme within 4 months of weird symptoms..and never was bedridden, always went to work full time and just kept on trucking.  I say, I am one of the lucky ones, but even with diagnosing my lyme in 4 months and experiencing what I went through, which was HELL, I cannot even imagine what it’s like for other people, who have much worst symptoms, if my symptoms were hell to me, which wasn’t alot of pain, but dizzyness,tingling,heavyness,anxiety, air hunger..etc, then I cannot comprehend what it’s like for other people who are truly suffering with excruciating pain.

I think what scared me most of my lyme disease, was not knowing when I will get better and even reading other people’s stories, scared me.  Till this day, I still read about lyme and looking looking for answers but I learned that I need to take it day by day…

I will always remember May, especially bring awareness to the disease to others. I got bit in May, the end of May last year 2011, not knowing that the bite I had was not a mosquito bite, but a tick bit..I will always remember May.